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Quality of Life Research OnlineFirst articles

Staying active, staying sharp: the relationship between physical activity and health-related quality of life for people living with cognitive impairment

  • Open Access

The rising life expectancy, mostly driven by advancements in medical technology, is contributing to a growing global population of older adults aged 65 years and over [ 1 , 2 ]. By 2066, the proportion of Australians aged 65 years or over is …

Strategies to promote the completion of patient-reported outcome measures by culturally and linguistically diverse and Indigenous Peoples in clinical care settings: A systematic review

  • Open Access
  • Review

Chronic conditions are long-lasting and persistent medical conditions that impact a person’s health-related quality of life (HRQL) [ 1 ] and are responsible for 74% of all deaths globally [ 2 ].

Socio-demographic disparities in health-related quality of life in hypertensive patients in Bangladesh: a comprehensive survey analysis

  • Open Access

Hypertension, a major contributor to non-communicable diseases (NCDs), is driving a public health crisis in Bangladesh, exacerbating conditions such as cardiovascular diseases, chronic kidney disease, and more [ 1 ]. These conditions collectively …

The mere-measurement effect of patient-reported outcomes: a systematic review and meta-analysis

  • Open Access
  • Review

Patient-reported outcome measures are increasingly collected in clinical settings for multiple purposes, including assessing the efficacy of new interventions, comparing population groups, assessing the quality of care delivered to patients, and …

Associations among positive child health measures in the environmental influences on child health outcomes (ECHO) cohort

Pediatric research and clinical care focus on measuring, preventing, or treating disease or other negative outcomes. Measuring and promoting positive health outcomes are increasingly important, especially in children with physical …

Delineating the dyadic coping process in HIV serodiscordant male couples: a dyadic daily diary study using the common fate model

  • Open Access

We-disease appraisal refers to viewing the illness as a shared experience within the relationship [ 10 ]. Berg and Upchurch [ 10 ] proposed that viewing the illness as “ours” rather than “mine” or “yours” can optimize the couple’s ability to …

Psychometric properties and post-hoc CAT analysis of the pediatric PROMIS® item banks anxiety and depressive symptoms in a combined Swedish Child and Adolescent Psychiatry and School sample

  • Open Access

The Patient-Reported Outcomes Measurement Information System (PROMIS) was initiated and funded by the National Institutes of Health (NIH) [ 1 ] to advance the science of patient-reported outcomes. The PROMIS pediatric project has specifically …

Self-compassion, mindfulness, and emotion regulation predict multiple dimensions of quality of life in US post-9/11 veterans

Quality of life (QoL) encompasses functioning (i.e., role performance), capacity to engage in activities, satisfaction, and material indicators across multiple domains including family, social interactions, work, and physical health [ 1 ]. Among US …

Understanding the unique patient—causal singularism and patient reported outcomes

  • Commentary

Patient reported outcome measures (PROMs) now play a significant role in randomized control trials (RCTs) providing the basis for efficacy or safety endpoints. Most PROM data is quantitative and is summarized at the group level. Whilst PROM data …

Relations between trajectories of weight loss and changes in psychological health over a period of 2 years following bariatric metabolic surgery

  • Open Access

Bariatric metabolic surgery (BMS) is an effective treatment method for severe obesity, leading to substantial weight loss and amelioration or even complete resolution of obesity-related medical conditions such as cardiovascular disease and …

Longitudinal relationships across sleep, physical activity, and mental wellbeing in early-to-mid-adolescence: a developmental cascades investigation

  • Open Access
  • Registered Report

Developmental cascades theory [ 1 ] proposes that functioning within and across domains, levels, and systems is developmentally intertwined, and that specific functions and behaviours ‘spread’ over time into other functions and behaviours through …

The role of different health information sources in moderating the impact of health literacy on health-related quality of life: evidence from a population-based study in Korea

This study is essential as it addresses the growing concern over health literacy, a crucial factor that influences health outcomes and disparities. Despite the importance of health literacy, there is limited understanding of how different sources …

Impact of signs and symptoms of dry eye disease on health-related quality of life: a cross-sectional population study among older adults

  • Open Access

A healthy ocular surface is essential for clear vision, comfort, and prevention of various eye disorders. The ocular surface is covered by a thin fluid layer, the tear film, which lubricates, protects, and supplies nutrients and optical clarity …

Patient involvement in the development of patient‐reported outcome measures used following hip or knee arthroplasty: a scoping review

  • Review

Involving patients in creating tools that measure their health outcomes is important for capturing their views accurately. However, we know little about how much patients contributed to the development of these tools for hip or knee replacement …

The Multimorbidity Questionnaire (MMQ1): English translation and validation of a Danish patient reported outcome measure for quality of life in people with multiple long-term conditions in a cross-sectional survey

  • Open Access

The growing number of people living with multiple long-term conditions (MLTC, multimorbidity) is one of the most significant challenges facing healthcare systems globally. In the UK, more than one in three adults live with MLTC, and in older …

Wellbeing and quality of life among parents of individuals with Fontan physiology

  • Open Access

Caring for a child with Fontan physiology, a unique heart circulation resulting from a series of palliative surgical procedures for single-ventricle congenital heart disease (CHD), presents both joys and challenges. In Fontan physiology, venous …

Patient-reported outcome measures (PROMs) used among liver transplant recipients: a systematic review and methodological quality appraisal

  • Review

In patient-centered care, patient-reported outcome measures (PROMs) have become the gold standard for estimating patients’ views or appraisals of a health intervention or disease. PROMs can be classified into generic and condition-specific; …

Differential item functioning between English, German, and Spanish PROMIS® physical function ceiling items

  • Open Access

We wanted to find out whether new questions added to a well-established health questionnaire assessing the ability to perform valued life activities worked similarly in German and Spanish translations compared to the original English version. We …