Introduction
Autism spectrum disorder (ASD) is a heterogeneous neurodevelopmental condition with a specific combination of deficits in social communication and interaction, as well as repetitive, restrictive, and inflexible patterns of interests, behaviours, or activities beginning early in life (World Health Organization,
2018). According to the Global Burden of Diseases, in 2019, ASD impacted approximately 28 million individuals (Solmi et al.,
2022) and nearly three million children under five years old (Li et al.,
2022) worldwide. Approximately 35% of children with ASD exhibit intelligence disability (defined as an intelligence quotient score ≤ 70 and experienced difficulties in adaptive functioning) (Maenner et al.,
2021), and 92% suffer psychiatric comorbidities such as attention-deficit/hyperactivity disorder as well as other emotional and behavioural problems (Brookman-Frazee et al.,
2018), leading to the propensity for long-term dependence on their parents and other family caregivers.
Parenting children with ASD is a challenging experience, particularly in mainland China, where the healthcare, educational, and social services for ASD families are in their infancy (Liu & To,
2022). Due to constraints in public services in mainland China, most ASD-related interventions have been provided by grassroots organizations funded by parents of children with ASD or by individuals with inadequate professional knowledge about ASD and insufficient training to implement ASD interventions (Liu & To,
2021). For the same reason, these parents are obligated to fulfil dual roles as caregivers (e.g., coping with their children’s ASD-related conditions and comorbidities) and as partners in multiple, complex, intervention programs (e.g., parent-mediated interventions) (Kurzrok et al.,
2021). These parents need to devote an enormous amount of time, effort, energy, and money to support and nurture their children’s life development and daily living (Marsack-Topolewski & Church,
2019). As a result, parents of children with ASD frequently encounter emotional difficulties (manifesting as distress, grief, denial, and other emotional problems) in accepting and accommodating their children’s ASD-related conditions (Drouillard,
2019). These chronic emotional difficulties not only reduce parents’ ability to sustain daily roles but also increase the potential for developing mental health problems. Previous cross-sectional studies reported that 44% of parents of children with ASD had clinically significant parental stress, 55% had psychological distress, and 34.2% had depressive symptoms (Gatzoyia et al.,
2014; van der Lubbe et al.,
2022). These emotional difficulties and mental health problems may prevent parents from adapting flexibly to their ASD children’s needs and taking appropriate actions to help their children reach their fullest developmental potential (Moreno Méndez et al.,
2020). Furthermore, long-term intensive and rigorous work with their children in everyday caregiving may cause these parents to neglect self-care, which can have negative impacts on their motivation to participate in parental intervention (e.g., parent-focused or parent-mediated interventions) and influence the effectiveness of these interventions (Alvarez et al.,
2015). Consequently, this may result in further negative influences on their children’s developmental outcomes (Operto et al.,
2021). Given the high prevalence of parental mental health problems and its negative impacts, as well as their emotional difficulties and unmet needs (e.g., neglecting self-care), it is crucial to help these parents care for themselves with openness and acceptance so that, in turn, they can maintain their well-being in caregiving.
Higher psychological flexibility (PF) is associated with lower parenting stress (Fonseca et al.,
2020), which enables parents to stay engaged with their ASD children and effectively adapt to the demands of their children and themselves in parenting/caregiving, and it further benefits their children’s health outcomes. PF is defined as an individual’s capacity to accept, cope with, and adjust to difficult situations (e.g., stay open, present, and engaged with their children regardless of unpleasant thoughts, feelings, and physiological sensations) while adapting one’s behaviours based on the situation and personal values (Kashdan et al.,
2020). Similar to cognitive flexibility, which was frequently utilized in autism and neuropsychological research and defined as the ability to adapt one’s thinking, cognitive process, and behaviors in response to changing circumstances, PF also involve adaptability and responsiveness to changing circumstances (Aslan & Türk,
2022). However, while cognitive flexibility is more specific to cognitive domains, such as attentional shifting and task switching, PF encompasses a broader range of cognitive, emotional, and behavioral processes (e.g., acceptance, values clarification, and committed action) (Grant & Cassidy,
2022). Previous studies indicated a significantly negative association between psychological inflexibility and mental health, indicating that psychological inflexibility could predict anxiety, depression, and stress symptomatology in mothers of children with ASD (Kulasinghe et al.,
2021). Conversely, parents with higher PF show better well-being (Cachia et al.,
2016). They are more willing to accept their own experience, redefine the meaning of parenting, and reassess their priorities for their ASD children’s intervention and development, rather than struggling with their negative thoughts and feelings (Byrne et al.,
2021). These parents are more likely to adopt adaptive parenting style and behaviors, such as focus on meaningful things (e.g., their children’s motives and intentions as well as self-care) and take value-based actions to better support their children with ASD (Dai & Carter,
2022). Furthermore, parental PF is related to child outcomes (e.g., internalizing and externalizing problems) through adaptive parenting practices (Brassell et al.,
2016). Accordingly, it is important to improve parents’ PF using evidence-based interventions, such as acceptance and commitment therapy (ACT).
Measurements for Psychological Flexibility
However, before designing an effective intervention to enhance the PF of parents of children with ASD, a reliable and valid instrument for evaluating parents’ PF is needed. A few instruments were developed to measure PF or psychological inflexibility, but a few major weaknesses were observed. Firstly, most measures have focused on one to two of the six omains of PF, leaving other domains unassessed. For example, the Acceptance and Action Questionnaire (AAQ; Hayes et al., [
2004]) and its second version (Bond et al.,
2011) primarily assess acceptance/experiential avoidance and cognitive defusion processes, while neglecting aspects such as self-as-context and committed action (Francis et al.,
2016). Similarly, measures like the Multidimensional Experiential Avoidance Questionnaire (MEAQ; Gámez et al., [
2011]), its brief version (Gámez et al.,
2014), and the Everyday Psychological Inflexibility Checklist (EPIC; Thompson et al. [
2019]) mainly targeted experiential avoidance, omitting other five domains of the PF constructs. Secondly, while a few measures such as Comprehensive Assessment of Acceptance and Commitment Therapy Processes (CompACT; Francis et al. [
2016]) and the Multidimensional Psychological Flexibility Inventory (MPFI; Rolffs et al. [
2016]) were developed to address this limitation and assess all six aspects of PF, they could be a burden to complete due to a relatively large number of items (e.g., the MPFI consisted of 60 items), particularly vulnerable respondents with severe physical or mental health problems. Thirdly, except for the MPFI and Open and Engaged State Questionnaire (OESQ; Benoy et al. [
2019a]), no other PF measures specify a time frame for respondents’ reference or consideration in answering the questions. This lack of temporal specificity may introduce recall bias and inaccuracy in the assessment results, as respondents are required to evaluate their entire life events before selecting an appropriate response category (e.g., “often”) to reflects on their experience (Benoy et al.,
2019a,
2019b).
In addition, several questionnaires were developed to assess PF in the context of parenting, such as Parental Acceptance and Action Questionnaire [PAAQ; Cheron et al. [
2009]), Experiential Avoidance in Caregiving Questionnaire (EACQ; Losada et al. [
2014]), Parental Psychological Flexibility Questionnaire (PPFQ; Burke and Moore [
2015]), Parental Acceptance Questionnaire (6-PAQ; Greene et al. [
2015]), and Parenting-Specific Psychological Flexibility (PSPF; Brassell et al. [
2016]). While these tools could be useful in assessing parental PF, several major limitations were noted. First, all the PF questionnaires had only been validated in specific target sample(s); and none of them was validated in parents with ASD. Second, most of these tools (e.g., EACQ [Losada et al.,
2014], PPFQ [Burke & Moore,
2015], and PSPF [Brassell et al.,
2016]) did not assess all the six processes/domains of PF. Third, some of the measures showed unsatisfactory or uncertain reliability and validity. For example, questionable internal consistency of the PAAQ was reported (Cronbach’s a = 0.65; Cheron et al. [
2009]). The stability of 6-PAQ was unexplored (Greene et al.,
2015), and the concurrent validity of EACQ was unsatisfactory (Losada et al.,
2014). As parents of children with ASD have vulnerable mental conditions and very demanding caregiving, a brief and precise questionnaire (e.g., Psy-Flex) to measure all six domains of PF should be validated among these parents for research and practice use.
The Psy-Flex
With these limitations in mind, the Psy-Flex was developed to efficiently measure PF (Gloster et al.,
2021). The Psy-Flex measures all six PF skills based on the ACT theory through only six items, minimizing the response burden. The strength of the instrument lies in its utilization of a shorter, more specific referent time frame (past one week) to reduce recall biases and inaccuracy. By doing so, it reduces boosting the context sensitivity and serves as an effective outcome measure that accurately reflects changes in response to an intervention. Moreover, the Psy-Flex has been demonstrated to be a reliable and effective tool for assessing PF across different populations and countries (Gloster et al.,
2021; Papageorgiou et al.,
2021). Specifically, the original English version of the Psy-Flex showed excellent internal reliability for total samples (Cronbach’s α = 0.91) and subsamples of non-clinical individuals (community members: α = 0.90, romantic dyads: α = 0.91) and in- and outpatients diagnosed with depression and anxiety disorders (inpatients: α = 0.78; outpatients: α = 0.97) in Switzerland (Gloster et al.,
2021). A one-factor model was confirmed for the Psy-Flex using confirmatory factor analysis (CFA), with an acceptable model fit across all of the subsamples used. Papageorgiou et al. (
2021) also validated the Psy-Flex in a Greek-Cypriot sample and reported good psychometric properties. In addition, this measurement could predict a unique variance in well-being and overall symptomatology, thus moderating the relationships between measures of pathology and well-being (Gloster et al.,
2021,
2023). Therefore, this brief and clinically useful instrument could help researchers estimate PF in clinical trials to evaluate the effectiveness of ACT-based interventions.
Given that parents of children with ASD have very high psychological distress, a reliable and valid instrument can aid healthcare providers in comprehending these parents’/caregivers’ PF and related distress and finding ways to improve their fewer desirable aspects of self-care and, thus, their parenting. Therefore, this study aimed to translate the English version of the Psy-Flex into the simplified Chinese language and to test the semantic equivalence and other psychometric properties of the translated Chinese Psy-Flex (Psy-Flex-C) among parents of children with ASD in China. The study objectives were to (1) translate the Psy-Flex into simplified Chinese from and back-translate to the original English version and test their semantic equivalence; and (2) evaluate the reliability and validity of the simplified Chinese version in Chinese parents of children with ASD.
Discussion
Our study translated the original English version of the Psy-Flex into simplified Chinese language and examined the reliability and validity of the Psy-Flex-C among Chinese parents of children with ASD. The results suggest that the Psy-Flex-C is an effective and valid measurement tool for PF among these parents. The Psy-Flex-C demonstrates a high level of semantic equivalence with the original scale, satisfactory content and face validity, and consistency in its one-factor structure compared to the original scale (Gloster et al.,
2021). It also shows good internal consistency and test–retest reliability, concurrent validity with the CompACT scale, convergent validity with a negative psychological outcome (parenting stress), and known-group validity to distinguish parents with and without high levels of parenting stress.
In terms of semantic equivalence, the Psy-Flex-C is found to be highly equivalent to the concepts and meaning of the items of the original scale. Additionally, the pre-test and evaluation of face validity confirm that the Psy-Flex-C was appropriately translated and understandable by parents with diverse educational levels. Moreover, based on comments provided by eight experts, all Psy-Flex-C items are highly clear and relevant to PF. Therefore, the translated items in Chinese retain the meaning of the original Psy-Flex, and both the English and Chinese versions of the Psy-Flex are content and face valid for assessing PF in parents of children with ASD (Gloster et al.,
2021). In addition, similar to the original scale, the satisfactory results of the CITC value and weighted kappa statistic indicate that the Psy-Flex-C has high internal consistency and test–retest reliability to accurately measure PF over time. Therefore, the six-item Psy-Flex-C could potentially be useful for repeatedly detecting PF changes and the development of clients’ ACT skills over time.
Consistent with the original scale (Gloster et al.,
2021) and Hebrew version (Gur et al.,
2024), the one-factor model is identified through CFA. This finding echoes the ACT model, which indicates that the six interrelated aspects of ACT work together to improve individuals’ PF (Hayes et al.,
2006). Moreover, correlated residuals are identified between items 1 and 3 and between items 3 and 4 in the CFA, suggesting a potential correlation between these items. In the ACT model, the six aspects are further categorized into two different change processes: the psychological change process (including contact with the present moment, acceptance, defusion, and self-as-context) and the behaviour change process (including contact with the present moment, self-as-context, values, and committed action) (Hayes et al.,
2006). Additionally, based on this model, items 1 (“Being present. Even if I am somewhere else with my thoughts, I can focus on what’s going on in important moments.”), 3 (“Leaving thoughts be. I can look at hindering thoughts from a distance without letting them control me.”), and 4 (“Steady self. Even if thoughts and experiences are confusing me, I can notice something like a steady core inside of me.”) are categorized as the psychological change process (Hayes et al.,
2006). These aspects of the psychological change process are all interrelated and interact with each other, hence empowering the behaviour change process. Moreover, all items of the Psy-Flex-C exhibit sufficient factor loadings (ranged from 50.6% to 88.2%). In particular, items 5 (“Awareness of one’s own values”) and 6 (“Being engaged”) demonstrate higher factor loadings (> 80%), indicating a strong association between these behavioral change process items and the latent factor being measured (parents’ PF). This finding emphasizes the importance of the behaviour change process in promoting PF (Fletcher & Hayes,
2005), particularly for parents of children with ASD, enabling them to align their values and priorities and take actions that support both their children and their own well-being (Marino et al.,
2021).
The concurrent validity results indicate that there are positive correlations between the Psy-Flex-C and the CompACT and its subscales. These findings suggest that the 6-item Psy-Flex-C could effectively assess PF similar to the CompACT, covering the six psychological aspects/processes of ACT. The Psy-Flex-C is significantly and positively correlated with the three subscales of the CompACT, namely, openness to experience, behavioural awareness, and valued action. These subscales align with the ACT triflex, which combines the six core ACT processes into three functional units: “open up (incorporated with defusion and acceptance)”, “be present (incorporated with self-as-context and contacting the present moment)”, and “do what matters (incorporated with values and commitment action)” (Harris & Hayes,
2019). Therefore, the Psy-Flex-C can be regarded as a reliable alternative instrument for assessing all aspects of ACT in a time-effective manner.
Satisfactory known-group validity of the Psy-Flex-C was obtained from the findings of significant differences in scores between the groups of parents with high and low parenting stress. This result was consistent with a cross-sectional study conducted by Lobato et al. (
2022), the findings indicated a statistically significant correlation between higher levels of PF in parents/caregivers of children/adults with intellectual disabilities and lower levels of parenting stress. The possible reason for this correlation was that PF could act as a personal resource for effectively managing the negative experiences in performing the parenting role and responsibility. Parents with lower PF might negatively evaluate parenting stress and employ negative stress management strategies such as control, avoidance, or suppression (Whittingham & Coyne,
2019). However, these strategies could paradoxically amplify negative experiences, leading to higher stress levels and maladaptive parenting practices (Coyne et al.,
2009). Another recent study in 250 mothers of children with ASD supported the link between lower PF and ineffective parental practices, as observed in a study by Fonseca et al. (
2020), highlighting the importance of PF in promoting sensitive responses to children’s needs and positive parenting practices, even in the presence of parenting stress. However, future studies are recommended to focus on exploring the mechanisms through which PF influences parenting stress and strategies among these parents.
In addition, the convergent validity results indicate that the Psy-Flex-C is negatively associated with scores in parenting stress and its domains (PD, PCDI, and DC). These significant relationships further strengthen the evidence that these factors, such as negative psychological outcomes, parent‒child relationships, and children’s conditions, are related to PF in the parenting context. Additionally, the findings align with previous research suggesting that improving parents’ PF, particularly by focusing on reducing parenting stress and symptomatology (e.g., distress; Kulasinghe et al.,
2021), could help parent‒child dyads improve their interaction and interrelationships and, thus, further support and improve their children’s neuro-developmental health conditions (Marino et al.,
2021).
Several limitations are identified in this study, which deserve to be addressed in future studies. First, we did not include bilingual parents of children with ASD for the semantic equivalence test. Bilingual parents are recommended to be included in semantic equivalence testing to enhance translation consistency and prevent cultural biases between the original (English) and translated (Chinese) versions. Indeed, the practicability of this method for this study was limited by the availability of bilingual parents of children with ASD in mainland China. However, the authors mitigated this concern by inviting 21 Ph.D. students in nursing or psychology (mainly bilingual) to compare the original English and translated Chinese versions. Second, although participants were recruited from special education from three different provinces in mainland China, the convenience sampling method limited the generalizability of the findings. Therefore, further studies are recommended to use a random sampling method to recruit larger samples from wider geographic sites. Third, only 50 out of 248 parents were randomly selected to participate in the evaluation of test–retest reliability. Even though the results showed that the Psy-Flex-C had good test–retest reliability, future studies are encouraged to utilize a large sample size of people from diverse sociodemographic and clinical backgrounds, as well as people from different geographical regions. Moreover, further testing of the psychometric properties of the Psy-Flex is suggested to confirm its construct validity and its one-factor structure using diverse samples and settings of Chinese populations. For example, given that the ultimate goal of interventions targeting PF is to improve clients’/parents’ mental health and well-being (Stenhoff et al.,
2020), future studies are suggested to examine the convergent validity of Psy-Flex with positive outcomes (e.g., quality of life, self-care) across diverse samples. Finally, due to the limitations of current measures designed specifically for assessing parental PF, this study selected a general context tool (Plex-Flex), and tested the psychometric properties of Psy-Flex-C among a specific parent population (parents of children with ASD). And to ensure the potential for generalizability in future studies, this study did not modify the content of Psy-Flex-C to the context of parenting or ASD. However, the sample in this study might not be representative to those divorce parents who are solely responsible for caring for their child with ASD, as well as those with multiple children with ASD. This might reduce the applicability of our findings to those specific subsets of parents who faced a heavier caregiving burden. Thus, future studies are recommended to tailor and validate this instrument within parenting and ASD context, encompassing diverse samples of parents to gain insights into their unique challenges, support needs, and family dynamics.
Despite the limitations noted above, the Psy-Flex-C can be useful for measuring the level of PF in Chinese parents of children with ASD. The questionnaire, which is simply phrased and user-friendly, took the participants approximately 5 min to complete. Therefore, the Psy-Flex-C could be more suitable than measurement instruments that require significant time, particularly for parents with heavy caregiving demands and responsibilities. Moreover, the Psy-Flex-C applies situational and temporal specifiers (i.e., past one week) to enhance its context sensitivity. This design helps to reduce the potential for recall bias and inaccuracies, which could potentially affect the validity results (e.g., test–retest validity) (Ong et al.,
2019). With increasing demands for outcome evaluation (especially outcomes targeting parents’ mental health and well-being) of family support interventions (e.g., ACT or ACT-based interventions) for parents of children with ASD (Yu et al.,
2019), measures of PF, such as the Psy-Flex-C in this study, should be important for developing and/or testing psychometrically sound/valid outcome measures of the level of PF in relevant research and clinical settings.
This study employed a rigorous process involving translation, expert comments, and online questionnaire surveys to evaluate and ensure that the Psy-Flex-C could be a reliable and valid measure among Chinese parents of children with ASD. Validating this scale is crucial for healthcare providers and researchers to comprehend the specific psychological construct (PF) of parents of children with ASD. To further investigate the validity, reliability and generalizability of the scale, researchers can test it with a wide range of populations across various practice settings, regions, and cultural backgrounds.
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