Skip to main content

Welkom bij Erasmus MC & Bohn Stafleu van Loghum

Erasmus MC heeft ervoor gezorgd dat je Mijn BSL eenvoudig en snel kunt raadplegen. Je kunt je links eenvoudig registreren. Met deze gegevens kun je thuis, of waar ook ter wereld toegang krijgen tot Mijn BSL.

Registreer

Om ook buiten de locaties van Erasmus MC, thuis bijvoorbeeld, van Mijn BSL gebruik te kunnen maken, moet je jezelf eenmalig registreren. Dit kan alleen vanaf een computer op een van de locaties van Erasmus MC.

Eenmaal geregistreerd kun je thuis of waar ook ter wereld onbeperkt toegang krijgen tot Mijn BSL.

Login

Als u al geregistreerd bent, hoeft u alleen maar in te loggen om onbeperkt toegang te krijgen tot Mijn BSL.

Top
Gepubliceerd in:

23-05-2020

Lived Experiences of Diagnostic Shifts in Child and Adolescent Mental Health Contexts: a Qualitative Interview Study with Young People and Parents

Auteurs: Cliodhna O’Connor, Fiona McNicholas

Gepubliceerd in: Research on Child and Adolescent Psychopathology | Uitgave 8/2020

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Psychiatric diagnoses are important resources in helping young people and families make sense of emotional or behavioural difficulties. However, the poor reliability of diagnoses in childhood means many young service-users experience their diagnosis being removed, revised or supplemented over time. No previous research has investigated how young service-users experience, understand or respond to alteration of their original diagnosis. The current study adopted a qualitative approach to explore the lived experience of diagnostic shifts in youth mental health contexts. Narrative interviews were conducted with families living in Ireland, who had direct experience of diagnostic shifts. Participants included 21 parents (19 female) and 14 young people (8 female, mean age = 14). Thematic analysis explored the range of interpretations and implications of diagnostic shifts in families’ lives, identifying three themes that underpinned participants’ narratives. Diverse Trajectories & Experiences outlined the variety of contexts for diagnostic shifts, ways they were communicated to parents and young people, and their clinical consequences. A Process of Readjustment captured processes of emotional and conceptual adaptation that followed a diagnostic shift. Finally, Social Repositioning explored how diagnostic shifts could prompt changes to interpersonal relations, social identity and stigma experiences. The study shows that diagnostic shifts carry significant emotional, social and practical repercussions. While diagnostic shifts may threaten the therapeutic relationship and service-user understanding, they also offer opportunities to enhance young people’s self-concept, social relationships and therapeutic engagement. Clinician awareness of the socio-emotional implications of diagnostic shifts is vital to inform sensitive communication and support strategies.
Voetnoten
1
These can be accessed for free by emailing the authors or at the website https://​paedsdiagnosis.​ucd.​ie/​resources/​.
 
Literatuur
go back to reference Bauer, M. W., & Aarts, B. (2000). Corpus construction: A principle for qualitative data collection. In M. W. Bauer & G. Gaskell (Eds.), Qualitative researching with text, image and sound: A practical handbook (pp. 19–37). London: Sage.CrossRef Bauer, M. W., & Aarts, B. (2000). Corpus construction: A principle for qualitative data collection. In M. W. Bauer & G. Gaskell (Eds.), Qualitative researching with text, image and sound: A practical handbook (pp. 19–37). London: Sage.CrossRef
go back to reference Bhugra, D., Tasman, A., Pathare, S., Priebe, S., Smith, S., Torous, J., Arbuckle, M. R., Langford, A., Alarcón, R. D., Chiu, H. F. K., First, M. B., Kay, J., Sunkel, C., Thapar, A., Udomratn, P., Baingana, F. K., Kestel, D., Ng, R. M. K., Patel, A., Picker, L. D., McKenzie, K. J., Moussaoui, D., Muijen, M., Bartlett, P., Davison, S., Exworthy, T., Loza, N., Rose, D., Torales, J., Brown, M., Christensen, H., Firth, J., Keshavan, M., Li, A., Onnela, J. P., Wykes, T., Elkholy, H., Kalra, G., Lovett, K. F., Travis, M. J., & Ventriglio, A. (2017). The WPA-lancet psychiatry commission on the future of psychiatry. The Lancet Psychiatry, 4(10), 775–818. https://doi.org/10.1016/S2215-0366(17)30333-4.CrossRefPubMed Bhugra, D., Tasman, A., Pathare, S., Priebe, S., Smith, S., Torous, J., Arbuckle, M. R., Langford, A., Alarcón, R. D., Chiu, H. F. K., First, M. B., Kay, J., Sunkel, C., Thapar, A., Udomratn, P., Baingana, F. K., Kestel, D., Ng, R. M. K., Patel, A., Picker, L. D., McKenzie, K. J., Moussaoui, D., Muijen, M., Bartlett, P., Davison, S., Exworthy, T., Loza, N., Rose, D., Torales, J., Brown, M., Christensen, H., Firth, J., Keshavan, M., Li, A., Onnela, J. P., Wykes, T., Elkholy, H., Kalra, G., Lovett, K. F., Travis, M. J., & Ventriglio, A. (2017). The WPA-lancet psychiatry commission on the future of psychiatry. The Lancet Psychiatry, 4(10), 775–818. https://​doi.​org/​10.​1016/​S2215-0366(17)30333-4.CrossRefPubMed
go back to reference Braun, V., & Clarke, V. (2013). Successful qualitative research. London: Sage. Braun, V., & Clarke, V. (2013). Successful qualitative research. London: Sage.
go back to reference Cooper, J. E., & Sartorius, N. (2013). A companion to the classification of mental disorders. Oxford: Oxford University Press.CrossRef Cooper, J. E., & Sartorius, N. (2013). A companion to the classification of mental disorders. Oxford: Oxford University Press.CrossRef
go back to reference Copeland, W. E., Adair, C. E., Smetanin, P., Stiff, D., Briante, C., Colman, I., Fergusson, D., Horwood, J., Poulton, R., Costello, E. J., & Angold, A. (2013). Diagnostic transitions from childhood to adolescence to early adulthood. Journal of Child Psychology and Psychiatry, 54(7), 791–799. https://doi.org/10.1111/jcpp.12062.CrossRefPubMed Copeland, W. E., Adair, C. E., Smetanin, P., Stiff, D., Briante, C., Colman, I., Fergusson, D., Horwood, J., Poulton, R., Costello, E. J., & Angold, A. (2013). Diagnostic transitions from childhood to adolescence to early adulthood. Journal of Child Psychology and Psychiatry, 54(7), 791–799. https://​doi.​org/​10.​1111/​jcpp.​12062.CrossRefPubMed
go back to reference Hollway, W., & Jefferson, T. (2013). Doing qualitative research differently: A psychosocial approach (2nd ed.). London: Sage.CrossRef Hollway, W., & Jefferson, T. (2013). Doing qualitative research differently: A psychosocial approach (2nd ed.). London: Sage.CrossRef
go back to reference Joffe, H. (2012). Thematic analysis. In D. Harper & A. Thompson (Eds.), Qualitative research methods in mental health and psychotherapy: An introduction for students and practitioners (pp. 209–223). Chichester: Wiley-Blackwell. Joffe, H. (2012). Thematic analysis. In D. Harper & A. Thompson (Eds.), Qualitative research methods in mental health and psychotherapy: An introduction for students and practitioners (pp. 209–223). Chichester: Wiley-Blackwell.
go back to reference Joffe, H., & Yardley, L. (2003). Content and thematic analysis. In D. F. Marks & L. Yardley (Eds.), Research methods for clinical and health psychology (pp. 56–68). London: Sage. Joffe, H., & Yardley, L. (2003). Content and thematic analysis. In D. F. Marks & L. Yardley (Eds.), Research methods for clinical and health psychology (pp. 56–68). London: Sage.
go back to reference Jovchelovitch, S., & Bauer, M. W. (2000). Narrative interviewing. In Martin W. Bauer & G. Gaskell (Eds.), Qualitative researching with text, image and sound: A practical handbook. (pp. 57–74). London: Sage. Jovchelovitch, S., & Bauer, M. W. (2000). Narrative interviewing. In Martin W. Bauer & G. Gaskell (Eds.), Qualitative researching with text, image and sound: A practical handbook. (pp. 57–74). London: Sage.
go back to reference Jutel, A. (2019). Diagnosis: Truths and Tales. Toronto: University of Toronto Press.CrossRef Jutel, A. (2019). Diagnosis: Truths and Tales. Toronto: University of Toronto Press.CrossRef
go back to reference Kerin, L. (2014). National & international literature review of good practice in child & adolescent mental health services. Dublin: Mental Health Reform. Kerin, L. (2014). National & international literature review of good practice in child & adolescent mental health services. Dublin: Mental Health Reform.
go back to reference Lahey, B. B., Loeber, R., Burke, J., Rathouz, P. J., & McBurnett, K. (2002). Waxing and waning in concert: Dynamic comorbidity of conduct disorder with other disruptive and emotional problems over 7 years among clinic-referred boys. Journal of Abnormal Psychology, 111(4), 556–567.CrossRef Lahey, B. B., Loeber, R., Burke, J., Rathouz, P. J., & McBurnett, K. (2002). Waxing and waning in concert: Dynamic comorbidity of conduct disorder with other disruptive and emotional problems over 7 years among clinic-referred boys. Journal of Abnormal Psychology, 111(4), 556–567.CrossRef
go back to reference Landis, J. R., & Koch, G. G. (1977). The measurement of observer agreement for categorical data. Biometrics, 33(1), 159–174.CrossRef Landis, J. R., & Koch, G. G. (1977). The measurement of observer agreement for categorical data. Biometrics, 33(1), 159–174.CrossRef
go back to reference Leavey, J. E. (2005). Youth experiences of living with mental health problems: Emergence, loss, adaptation and recovery (ELAR). Canadian Journal of Community Mental Health, 24(2), 109–126.CrossRef Leavey, J. E. (2005). Youth experiences of living with mental health problems: Emergence, loss, adaptation and recovery (ELAR). Canadian Journal of Community Mental Health, 24(2), 109–126.CrossRef
go back to reference O’Connor, C., Downs, J., Shetty, H., & McNicholas, F. (2019b). Diagnostic trajectories in child and adolescent mental health services: Exploring the prevalence and patterns of diagnostic adjustments in an electronic mental health case register. European Child & Adolescent Psychiatry. https://doi.org/10.1007/s00787-019-01428-z. O’Connor, C., Downs, J., Shetty, H., & McNicholas, F. (2019b). Diagnostic trajectories in child and adolescent mental health services: Exploring the prevalence and patterns of diagnostic adjustments in an electronic mental health case register. European Child & Adolescent Psychiatry. https://​doi.​org/​10.​1007/​s00787-019-01428-z.
go back to reference Singh, I. (2003). Boys will be boys: Fathers’ perspectives on ADHD symptoms, diagnosis, and drug treatment. Harvard Review of Psychiatry, 11(6), 308–316.PubMed Singh, I. (2003). Boys will be boys: Fathers’ perspectives on ADHD symptoms, diagnosis, and drug treatment. Harvard Review of Psychiatry, 11(6), 308–316.PubMed
go back to reference Stephan, K. E., Bach, D. R., Fletcher, P. C., Flint, J., Frank, M. J., Friston, K. J., Heinz, A., Huys, Q. J. M., Owen, M. J., Binder, E. B., Dayan, P., Johnstone, E. C., Meyer-Lindenberg, A., Montague, P. R., Schnyder, U., Wang, X.-J., & Breakspear, M. (2016). Charting the landscape of priority problems in psychiatry, part 1: Classification and diagnosis. The Lancet Psychiatry, 3(1), 77–83. https://doi.org/10.1016/S2215-0366(15)00361-2.CrossRefPubMed Stephan, K. E., Bach, D. R., Fletcher, P. C., Flint, J., Frank, M. J., Friston, K. J., Heinz, A., Huys, Q. J. M., Owen, M. J., Binder, E. B., Dayan, P., Johnstone, E. C., Meyer-Lindenberg, A., Montague, P. R., Schnyder, U., Wang, X.-J., & Breakspear, M. (2016). Charting the landscape of priority problems in psychiatry, part 1: Classification and diagnosis. The Lancet Psychiatry, 3(1), 77–83. https://​doi.​org/​10.​1016/​S2215-0366(15)00361-2.CrossRefPubMed
go back to reference Vasileiou, K., Barnett, J., Thorpe, S., & Young, T. (2018). Characterising and justifying sample size sufficiency in interview-based studies: Systematic analysis of qualitative health research over a 15-year period. BMC Medical Research Methodology, 18(148). https://doi.org/10.1186/s12874-018-0594-7. Vasileiou, K., Barnett, J., Thorpe, S., & Young, T. (2018). Characterising and justifying sample size sufficiency in interview-based studies: Systematic analysis of qualitative health research over a 15-year period. BMC Medical Research Methodology, 18(148). https://​doi.​org/​10.​1186/​s12874-018-0594-7.
go back to reference Yardley, L. (2008). Demonstrating validity in qualitative psychology. In J. A. Smith (Ed.), Qualitative psychology: A practical guide to research methods (pp. 235–251). London: Sage. Yardley, L. (2008). Demonstrating validity in qualitative psychology. In J. A. Smith (Ed.), Qualitative psychology: A practical guide to research methods (pp. 235–251). London: Sage.
Metagegevens
Titel
Lived Experiences of Diagnostic Shifts in Child and Adolescent Mental Health Contexts: a Qualitative Interview Study with Young People and Parents
Auteurs
Cliodhna O’Connor
Fiona McNicholas
Publicatiedatum
23-05-2020
Uitgeverij
Springer US
Gepubliceerd in
Research on Child and Adolescent Psychopathology / Uitgave 8/2020
Print ISSN: 2730-7166
Elektronisch ISSN: 2730-7174
DOI
https://doi.org/10.1007/s10802-020-00657-0