Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

16-11-2020 | Original Paper

Early Intervention Delivery Methods for New Zealand Children with Autism: Current Practices Versus Parental Preferences

Auteurs: Carla Wallace-Watkin, Andrew J. O. Whitehouse, Hannah Waddington

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 9/2021

Abstract

Little is known about parent preferences regarding delivery methods of early interventions. This research examined, through parent report, the current and preferred delivery methods of seven common educational early interventions accessed by New Zealand children with autism spectrum disorder. Responses from 63 eligible participants were collected via an online questionnaire. Results suggested that four of the seven early intervention services were predominantly delivered through some form of professional advice to parents. Participants who were receiving at least one privately funded service were more likely to have at least one service delivered directly to their child. Parents’ most preferred delivery method for all early intervention services, except parent education programs, involved a professional working directly with their child.

vorige artikel Observed Social Emotional Behavior at 22 Months Predicts a Later ASD Diagnosis in High-Risk Siblings

volgende artikel The Role of Decision-Making in Psychological Wellbeing and Risky Behaviours in Autistic Adolescents Without ADHD: Longitudinal Evidence from the UK Millennium Cohort Study

Alvares, G. A., Bebbington, K., Cleary, D., Evans, K., Glasson, E. J., Maybery, M. T., et al. (2020). The misnomer of ‘high functioning autism’: Intelligence is an imprecise predictor of functional abilities at diagnosis. Autism, 24(1), 221–232. https://doi.org/10.1177/1362361319852831.CrossRefPubMed

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorder (5th ed.). https://doi.org/10.1176/appi.books.9780890425596.

Bindlish, N., Kumar, R., Mehta, M., & Dubey, K. T. (2018). Effectiveness of parent-led interventions for autism and other developmental disorders. Indian Journal of Health and Wellbeing, 9(2), 303–307. https://search.proquest.com/docview/2018608845?accountid=14782.

Bonis, S. (2016). Stress and parents of children with autism: A review of literature. Issues in Mental Health Nursing, 37(3), 153–163. https://doi.org/10.3109/01612840.2015.1116030.CrossRefPubMed

Bowker, A., D’Angelo, N. M., Hicks, R., & Wells, K. (2011). Treatments for autism: Parental choice and perceptions of change. Journal of Autism and Developmental Disorders, 41(10), 1373–1382. https://doi.org/10.1007/s10803-010-1164-y.CrossRefPubMed

Burrell, T. L., & Borrego, J., Jr. (2012). Parents’ involvement in ASD treatment: What is their role? Cognitive and Behavioural Practice, 19, 423–432. https://doi.org/10.1016/j.cbpra.2011.04.003.CrossRef

Carlon, S., Carter, M., & Stephenson, J. (2015). Decision-making regarding early intervention by parents of children with autism spectrum disorder. Journal of Developmental and Physical Disabilities, 27, 285–305. https://doi.org/10.1007/s10882-014-9415-z.CrossRef

Centers for Disease Control and Prevention. (2018). Autism Spectrum Disorder. https://www.cdc.gov/ncbddd/autism/data.html.

Chawarska, K., Klin, A., Paul, R., & Volkmar, F. (2007). Autism spectrum disorder in the second year: Stability and change in syndrome expression. Journal of Child Psychology and Psychiatry, 48, 128–138. https://doi.org/10.1111/j.1469-7610.2006.01685.x.CrossRefPubMed

Denne, L. D., Hastings, R. P., & Hughes, C. J. (2018). Common approaches to intervention for the support and education of children with autism in the UK: An internet-based parent survey. International Journal of Developmental Disabilities, 64, 105–112. https://doi.org/10.1080/20473869.2016.1275439.CrossRef

Edwards, A., Brebner, C., McCormack, P. F., & MacDougall, C. (2016). “More than blowing bubbles”: What parents want from therapists working with children with autism. International Journal of Speech-Language Pathology, 18, 493–505. https://doi.org/10.3109/17549507.2015.1112835.CrossRefPubMed

Estes, A., Munson, J., Rogers, S. J., Greenson, J., Winter, J., & Dawson, G. (2015). Long-term outcomes of early intervention in 6-year-old children with autism spectrum disorder. Journal of the American Academy of Child & Adolescent Psychiatry, 54, 580–587. https://doi.org/10.1016/j.jaac.2015.04.005.CrossRef

Farmer, J., & Reupert, A. (2013). Understanding autism and understanding my child with autism: An evaluation of a group parent education program in rural Australia. Australian Journal of Rural health, 21(1), 20–27. https://doi.org/10.1111/ajr.12004.CrossRef

Fettig, A., & Fleury, V. (2017). Early intervention services for children with autism. In D. Zager, D. F. Cihak, & A. Stone-MacDonald (Eds.), Autism spectrum disorders: Identification, education, and treatment (4th ed., pp. 124–141). Routledge.

Green, V. A., Pituch, K. A., Itchon, J., Choi, A., O’Reilly, M., & Sigafoos, J. (2006). Internet survey of treatments used by parents of children with autism. Research in Developmental Disabilities, 27, 70–84. https://doi.org/10.1016/j.ridd.2004.12.002.CrossRefPubMed

Green, J., Pickles, A., Pasco, G., Bedford, R., Wan, M. W., Elsabbagh, M., et al. (2017). Randomised trial of a parent-mediated intervention for infants at high risk for autism: Longitudinal outcomes to age 3 years. Journal of Child Psychology and Psychiatry, 58, 1330–1340. https://doi.org/10.1111/jcpp.12728.CrossRefPubMed

Goin-Kochel, R. P., Myers, B. J., & Mackintosh, V. H. (2007). Parental reports on the use of treatments and therapies for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 1(3), 195–209. https://doi.org/10.1016/j.rasd.2006.08.006.CrossRef

Hume, K., Bellini, S., & Pratt, C. (2005). The usage and perceived outcomes of early intervention and early childhood programs for young children with autism spectrum disorder. Topics in Early Childhood Special Education, 25, 195–207. https://doi.org/10.1177/02711214050250040101.CrossRef

Johnson, R. B., & Christensen, L. B. (2017). Educational research: Quantitative, qualitative, and mixed approaches. SAGE Publications Inc.

Kasilingam, N., Waddington, H., & van der Meer, L. (2019). Early intervention for children with autism spectrum disorders in New Zealand: What children get and what parents want. International Journal of Disability, Development and Education. https://doi.org/10.1080/1034912X.2019.1696949.CrossRef

Licari, M., Alvares, G., Varcin, K., Evans, K., Cleary, D., Reid, S., et al. (2019). Prevalence of motor difficulties in autism spectrum disorder: Analysis of a population-based cohort. Autism Research. https://doi.org/10.1002/aur.2230.CrossRefPubMed

Meaden, H., Ostrosky, M., Zaghlawan, H., & Yu, S. (2009). Promoting the social and communicative behaviour of young children with autism spectrum disorders. Topics in Early Childhood Special Education, 29, 90–104. https://doi.org/10.1177/0271121409337950.CrossRef

Ministry of Education. (2019). Early intervention services. https://www.education.govt.nz/early-childhood/teaching-and-learning/early-intervention/#sh-Early%20intervention%20services.

Ministry of Education. (2020). The team that will support your child. https://parents.education.govt.nz/learning-support/learning-support-needs/the-team-that-will-support-your-child/.

Minjarez, M. B., Karp, E. A., Stahmer, A. C., & Brookman-Frazee, L. (2020). Empowering parents through parent training and coaching. In Y. Bruinsma, M. B. Minjarez, L. Schreibman, & A. C. Stahmer (Eds.), Naturalistic developmental behavioral interventions for autism spectrum disorder (pp. 77–98). Paul H. Brookes Publishing Co.

Patten, E., Baranek, G. T., Watson, L. R., & Shultz, B. (2013). Child and family characteristics influencing intervention choices in autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 28(3), 138–146. https://doi.org/10.1177/1088357612468028.CrossRefPubMed

Pickles, A., Le Couteur, A., Leadbitter, K., Salomone, E., Cole-Fletcher, R., Tobin, H., et al. (2016). Parent-mediated social communication therapy for young children with autism (PACT): Long-term follow-up of a randomized trial. The Lancet, 388, 2501–2509. https://doi.org/10.1016/S0140-6736(16)31229-6.CrossRef

Salomone, E., Beranová, S., Bonnet-Brilhault, F., Briciet Lauritsen, M., Budisteanu, M., Buitelaar, J., et al. (2016). Use of early intervention for young children with autism spectrum disorder across Europe. Autism, 20, 233–249. https://doi.org/10.1177/1362361315577218.CrossRefPubMed

Shepherd, D., Csako, R., Landon, J., Goedeke, S., & Ty, K. (2018). Documenting and understanding parent’s intervention choices for their child with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48, 988–1001. https://doi.org/10.1007/s10803-017-3395-7.CrossRefPubMed

Watts Pappas, N., & McLeod, S. (2008). Parents’ perceptions of their involvement in pediatric allied health intervention. In N. Watts Pappas & S. McLeod (Eds.), Working with families in speech-language pathology (pp. 73–110). Plural Publishing.

Webb, S. J., Jones, E. J. H., Kelly, J., & Dawson, G. (2014). The motivation for very early intervention in infants at high risk for autism spectrum disorders. International Journal of Speech Language Pathology, 16, 36–42. https://doi.org/10.3109/17549507.2013.861018.CrossRefPubMedPubMedCentral

Zwaigenbaum, L., Bauman, M. L., Choueiri, R., Kasari, C., Carter, A., Granpeesheh, D., et al. (2015). Early intervention for children with autism spectrum disorder under 3 years of age: Recommendations for practice and research. Pediatrics, 136, S60–S81. https://doi.org/10.1542/peds.2014-3667E.CrossRefPubMed

Titel: Early Intervention Delivery Methods for New Zealand Children with Autism: Current Practices Versus Parental Preferences
Auteurs: Carla Wallace-Watkin
Andrew J. O. Whitehouse
Hannah Waddington
Publicatiedatum: 16-11-2020
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 9/2021
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-020-04777-w

Andere artikelen Uitgave 9/2021

A Meta-analysis of Outcome Studies of Autistic Adults: Quantifying Effect Size, Quality, and Meta-regression

Open Access
Original Paper

Risk for Premature Mortality and Intentional Self-harm in Autism Spectrum Disorders

Open Access
Original Paper

Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders?

Open Access
Original Paper

Are Children With Autism More Likely to Retain Object Names When Learning From Colour Photographs or Black-and-White Cartoons?

Open Access
Original Paper

The Neurobiology of Semantic Processing in Autism Spectrum Disorder: An Activation Likelihood Estimation Analysis

Original Paper

Reminiscing and Autobiographical Memory in ASD: Mother–Child Conversations About Emotional Events and How Preschool-Aged Children Recall the Past

Original Paper

Bohn Stafleu van Loghum

Welkom bij Erasmus MC & Bohn Stafleu van Loghum

Registreer

Login

Early Intervention Delivery Methods for New Zealand Children with Autism: Current Practices Versus Parental Preferences

Abstract

Andere artikelen Uitgave 9/2021

A Meta-analysis of Outcome Studies of Autistic Adults: Quantifying Effect Size, Quality, and Meta-regression

Risk for Premature Mortality and Intentional Self-harm in Autism Spectrum Disorders

Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders?

Are Children With Autism More Likely to Retain Object Names When Learning From Colour Photographs or Black-and-White Cartoons?

The Neurobiology of Semantic Processing in Autism Spectrum Disorder: An Activation Likelihood Estimation Analysis

Reminiscing and Autobiographical Memory in ASD: Mother–Child Conversations About Emotional Events and How Preschool-Aged Children Recall the Past

Bohn Stafleu van Loghum

Welkom bij Erasmus MC & Bohn Stafleu van Loghum

Registreer

Login

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

A Meta-analysis of Outcome Studies of Autistic Adults: Quantifying Effect Size, Quality, and Meta-regression

Risk for Premature Mortality and Intentional Self-harm in Autism Spectrum Disorders

Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders?

Are Children With Autism More Likely to Retain Object Names When Learning From Colour Photographs or Black-and-White Cartoons?

The Neurobiology of Semantic Processing in Autism Spectrum Disorder: An Activation Likelihood Estimation Analysis

Reminiscing and Autobiographical Memory in ASD: Mother–Child Conversations About Emotional Events and How Preschool-Aged Children Recall the Past