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Gepubliceerd in:

26-06-2023

Development and initial psychometric evaluation of a COVID-related psychosocial experiences questionnaire for cancer survivors

Auteurs: Estefany Saez-Clarke, Amy K. Otto, Sarah Prinsloo, Akina Natori, Richard W. Wagner, Telma I. Gomez, Jewel M. Ochoa, Shelley S. Tworoger, Cornelia M. Ulrich, Cassandra A. Hathaway, Anita R. Peoples, Michael H. Antoni, Julienne E. Bower, Lorenzo Cohen, Frank J. Penedo

Gepubliceerd in: Quality of Life Research | Uitgave 12/2023

Abstract

Background

Cancer survivors are at elevated risk of psychological problems related to COVID-19, yet no published measure adequately assesses their psychosocial experiences during the pandemic.

Purpose

Describe the development and factor structure of a comprehensive, self-report measure (COVID-19 Practical and Psychosocial Experiences questionnaire [COVID-PPE]) assessing the pandemic’s impact on US cancer survivors.

Methods

The sample (n = 10,584) was divided into three groups to assess COVID-PPE factor structure by conducting: (1) initial calibration/exploratory analysis of the factor structure of 37 items (n = 5070), (2) confirmatory factor analysis of the best-fitting model (36 items after item removal; n = 5140), and (3) post-hoc confirmatory analysis with an additional six items not collected in the first two groups (42 items; n = 374).

Results

The final COVID-PPE was divided into two sets of subscales, conceptualized as Risk Factors and Protective Factors. The five Risk Factors subscales were labeled Anxiety Symptoms, Depression Symptoms, Health Care Disruptions, Disruptions to Daily Activities and Social Interactions, and Financial Hardship. The four Protective Factors subscales were labeled Perceived Benefits, Provider Satisfaction, Perceived Stress Management Skills, and Social Support. Internal consistency was acceptable for seven subscales (αs = 0.726–0.895; ωs = 0.802–0.895) but poor or questionable for the remaining two subscales (αs = 0.599–0.681; ωs = 0.586–0.692).

Conclusions

To our knowledge, this is the first published self-report measure comprehensively capturing psychosocial impact—both positive and negative—of the pandemic on cancer survivors. Future work should evaluate predictive utility of COVID-PPE subscales, particularly as the pandemic evolves, which may inform recommendations for cancer survivors and facilitate identification of survivors most in need of intervention.

vorige artikel Health outcomes before and during the COVID-19 pandemic in caregivers of service members and veterans with traumatic brain injury

volgende artikel Comparative effectiveness of verbal instruction versus video-based education (VIVid) among family caregivers for improving the quality of life in advanced head and neck cancer patients receiving palliative care in Eastern India: a randomized controlled trial

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Titel: Development and initial psychometric evaluation of a COVID-related psychosocial experiences questionnaire for cancer survivors
Auteurs: Estefany Saez-Clarke
Amy K. Otto
Sarah Prinsloo
Akina Natori
Richard W. Wagner
Telma I. Gomez
Jewel M. Ochoa
Shelley S. Tworoger
Cornelia M. Ulrich
Cassandra A. Hathaway
Anita R. Peoples
Michael H. Antoni
Julienne E. Bower
Lorenzo Cohen
Frank J. Penedo
Publicatiedatum: 26-06-2023
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 12/2023
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-023-03456-4

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Impaired health-related quality of life in the HCV cure era: who is concerned? (ANRS CO22 HEPATHER French cohort)

The Patient Generated Index (PGI) as an early-warning system for predicting brain health challenges: a prospective cohort study for people living with Human Immunodeficiency Virus (HIV)

Estimating meaningful change for The Impact of Weight on Self-Perception (IW-SP) questionnaire among people with type 2 diabetes

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Development and initial psychometric evaluation of a COVID-related psychosocial experiences questionnaire for cancer survivors

Abstract

Background

Purpose

Methods

Results

Conclusions

Andere artikelen Uitgave 12/2023

Impaired health-related quality of life in the HCV cure era: who is concerned? (ANRS CO22 HEPATHER French cohort)

The Patient Generated Index (PGI) as an early-warning system for predicting brain health challenges: a prospective cohort study for people living with Human Immunodeficiency Virus (HIV)

Estimating meaningful change for The Impact of Weight on Self-Perception (IW-SP) questionnaire among people with type 2 diabetes

Translation and validation of a Chinese version of the pancreatitis quality of life instrument (PANQOLI) in patients with chronic pancreatitis

Health outcomes before and during the COVID-19 pandemic in caregivers of service members and veterans with traumatic brain injury

Patient quality of life and caregiver experiences in ovarian cancer: How are they related?

Bohn Stafleu van Loghum

Welkom bij Erasmus MC & Bohn Stafleu van Loghum

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Abstract

Background

Purpose

Methods

Results

Conclusions

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Impaired health-related quality of life in the HCV cure era: who is concerned? (ANRS CO22 HEPATHER French cohort)

The Patient Generated Index (PGI) as an early-warning system for predicting brain health challenges: a prospective cohort study for people living with Human Immunodeficiency Virus (HIV)

Estimating meaningful change for The Impact of Weight on Self-Perception (IW-SP) questionnaire among people with type 2 diabetes

Translation and validation of a Chinese version of the pancreatitis quality of life instrument (PANQOLI) in patients with chronic pancreatitis

Health outcomes before and during the COVID-19 pandemic in caregivers of service members and veterans with traumatic brain injury

Patient quality of life and caregiver experiences in ovarian cancer: How are they related?