Purpose
Prior research demonstrates that children with autism are more likely to experience unintentional injuries than the general population. Limited research exists on the symptoms or traits directly related to autism and this elevated injury rate, especially from the perspective of families with children with autism. This study used qualitative methodology to elucidate risk factors that may contribute to unintentional injuries in children with autism from the perspective of mothers raising children with autism.
Methods
Participants included 15 mothers reporting on their children with autism. The mothers engaged in a semi-structured qualitative interview consisting of questions related to child characteristics, injury concerns and experiences, injury prevention strategies and resources, and safety behaviors. Interviews were transcribed and coded in NVivo following a systematic, deductive approach.
Results
Injury risk and concern among mothers was generally related to both the diagnostic and associated features of ASD as well as commonly co-occurring behaviors or disorders. Mothers reported that deficits in social communication and social interaction, plus restricted or repetitive patterns of behavior, contributed to increased unintentional injury risk. Additionally, mothers reported that general developmental differences and behavior during play or exploration increased risk of injury.
Conclusions
By considering the lived experiences of families of children with autism, this study reveals that specific diagnostic features, associated features, and other behaviors often co-occurring with autism underlie parental perceptions of increased risk of and concern for unintentional injury in children with autism. These findings guide where intervention is needed and inform development of evidence-based, practical safety interventions.